Thursday, March 29, 2012

Filed Away

Tuesday came and went, with no results in from the lab. The doctor's receptionist told me to check again on Thursday. Then yesterday (Wednesday), I was putting Grace back into her carseat after a trip to the gym and I heard my phone buzz. I'd missed a call from them! My phone has been permanently attached to my hip pocket since all this started, and of course I miss the doctor calling to tell me the test results are in.

I drove home, obeying all traffic laws, and called them back. Dr. M only had a few minutes to talk to me, but it was enough time to tell me that the Oncotype Dx results were "good". My score is well within the low-risk category. This means that chemo would not benefit me. As he said, "Chemo would not be good for you." That is the take-home message, my friends.

So now, I've scheduled my appointment to go in and get set up to begin radiotherapy. After that starts, I'll see Dr. M to begin taking Tamoxifen. This is known as "hormone therapy", and is given in the majority of breast cancers. Most breast cancers have hormone receptors, which means, in a sense, that they feed off those hormones. My cancer was mostly estrogen receptive. Here's the kindergarten explanation (which is about where I'm at in all this!) of what Tamoxifen does: it keeps estrogen from getting to the cancer cells, starving them of what they need to grow. Most breast cancer patients take it for 5 years. It has some side effects, but is shown to be remarkably effective.

This is all good news. In fact, it's great news! Yesterday after I got off the phone, Jason and my parents were asking me how I felt. "Aren't you relieved?" I am! I really am. But to tell you the truth, I didn't really feel much of anything. Yes, I worried a little about the number, wondering if it was low enough. I think, with something like this, you second guess it no matter the result.

Really, my emotions in general have been subdued over this whole thing. I think it just makes it easier to cope. I wasn't elated with yesterday's news, but I wasn't sobbing when I was told I had breast cancer, either. To hang my heart on every doctor's phone call and lab result is frankly too exhausting for me. I think I have tried to adopt an even-keel kind of outlook, because I know that I have to deal with whatever the news is going to be--good or bad. So, even though I've had a positive outlook and tried to believe the best, I've never taken chemo off the table. Until yesterday. I was honestly ready to do whatever I needed to do. And to do that, I've needed to not be too emotional about any of it. Roller coasters are fun for a very short time, but after that they just make everyone queasy.

I'm now feeling the same way about this genetic testing. If the results come back that I have the gene mutation for breast cancer, a lot of things get put back on the table. (I'll explain more on that later!) So in my mind, it's almost like these issues: possible surgery in the future, radiotherapy, fertility, cancer returning, etc., are all file folders open on my desk. I won't close any of them yet because it would be too difficult and upsetting to get them back out again once they've been filed away. Or at least, that's how it works for me.

But I can file away the one labeled "chemotherapy". And that's a good thing! I know I'm kind of rambling here--it sounds so abstract, even to me! I mean, obviously talking to y'all is therapeutic for me in some way. And all your comments and thoughts have been so helpful and encouraging to me, too. I guess if I were reading, I think I'd be interested to know what this is like from the "inside". So many of us have friends or family that deal with breast cancer at some point. Or I think that if someone who's in the same situation stumbles across this blog, maybe they'll relate. In a way, I want people to know that dealing with this is not tears and misery 24/7. Yes there is stress and frustration and fear, but it is do-able. It is. If this card comes up for you...you can get through it.

I know I'm one of the lucky ones to be able to say that: with an early stage, treatable cancer, and that I might feel very differently if my diagnosis was different. But I guess this is just my perspective, which is why it's a blog!

Anyway, that's the latest from meeeee. I have been venting emotion in other ways, though. I find I speak my mind more freely with people lately, and Jason tells me I have been much more sassy than usual. Actually, I think he said surly, but sassy sounds much more charming, doesn't it? I even got into an political debate on Facebook today! Me! Of all people! The most non-confrontational person on the planet! I never go there. (It's my number 1 FB rule. That way lies madness.) Obviously there is some pent up stress needing an outlet.

Anyone else been blowing off steam lately?








18 comments:

  1. I too am thrilled and relieved with that result. Onward and upward with all your own hair.

    That facebook thread is just bananas though. I can't believe how intolerable some of your fb friends are. I say that in the spirit of Christ's love: they are intolerable. Seacrest out!

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    1. "Roller coasters..." never much cared for them at all. Speed is good, but falling, not much.

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  2. So glad that it's another one "filed away!"

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  3. Good news! At least you know the best way forward now. And I think it's great you can take both the good and the bad with some kind of calm.

    And I've been following your hot new political debate! FB definitely could be the descent into madness...

    Love you!

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  4. Oh happy day! Amen to FB. You are awesome.

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  5. Amy you made sense, totally:) I think I probably would be like you too....non emotional so I don't go from up to down and back up, I dont do ups and downs it's exhausting lol! So I get what you're saying:)
    Now to FB, I haven't visited for a few days and it seems I missed something exciting.....you know where I'm off to now don't you :)

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  6. We are celebrating the "no chemo" news here. We're hopeful for a "no gene" report soon. Great blog. I'm like you, roller coasters are not for me.

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  7. Great news, Amy! Thanks for sharing with us how you're making your way through this. Glad you're finding ways to vent your emotion.

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  8. cancer or no cancer, we all have those days when we just want to blow off steam and don't want any feedback. just someone to listen. i ran into a old friend in the grocery store today. i hadn't seen her for months, and you know what...we both got to vent about silly things that had been bothering us and we both walked away quite happy. i think we had a divine appointment today. So maybe your blog is your divine appointment...a place to blow off a little steam....steph mac

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  9. So relieved to read the update!! And so, so very glad you don't have to endure chemo. I love the way you described the folders on your desk. :) And yes, honestly, need to blow off steam in a productive way about trying to buy a home. It's been a process I wouldn't wish on an enemy. I know it's nothing compared to cancer, and there's a million other problems in life I'm grateful I don't have to face. First world problem as they'd say. That's all for now though :) Love you girl. Thank you so much for sharing.

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  10. Fantastic news. I think you have a wonderfully healthy attitude about all of this. I imagine that your thoughts are seriously helpful to lots of people on all sides of this situation.

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    1. Thanks sweetie! Appreciate you--you made me smile, too!

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  12. I am SOOOOO late to the game here, but WOOHOO!! Truly relieved. Your attitude is a wonderful example for everyone. And your experience does give you the right to get as sassy or even surly as you want. I just had to go to Facebook and track down that feed you were talking about. EEk! I once foolishly started an argument re: gay marriage in my FB feed, and it went on for DAYS. Along with all my leftie actor friends, I have a few people I knew from high school in TX, and they got HOT. Finally, an old TX friend who is a preacher, but one more along the lines of YOU, wrote me a private message and told me "Gretchen, you are arguing with the Pharisees! Step away! They will never get it!" Probably wise.

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  13. That is WONDERFUL news!!

    Oh, and sassy is *definitely* preferable to surly. I'm sure much more accurate, too.

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  14. This is such a relief, Ames! xoxo

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  15. Just catching up and so thrilled to hear that you don't need chemo! I am sure having your parents there is a wonderful support right now - know that Jeff and I are thinking of you guys and sending love

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